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Act 1 · Understand

Invisible Challenges

Persons with autism often face challenges that are invisible to the eye. Understanding them is the first step to offering genuine support.

Functional communication
Functional communication

"My gestures, my communication device, the sounds I make — they're all my voice, too."

Not everyone communicates in spoken sentences. Some persons with autism use gestures, devices, or familiar phrases. Others simply need more time to find the right words.

Different doesn't mean less — it is simply a different way of expressing and understanding. And not all persons with autism have the same communication abilities or needs.

The goal is always to find a way to connect, not to insist on one form of communication over another.

How PWAs choose to voice their needs

  • A communication board or the use of visuals in conversation
  • Alternative and Augmentative Communication (AAC) tools such as sign language or text-to-speech technology
  • Gestures, facial expressions, or familiar phrases
  • Writing, drawing, or digital devices

If someone couldn't speak to you directly, how would you make space for them to communicate in their own way?

Routine behaviour
Routine behaviour

"I love routines, but I can adapt to changes too. Give me some time."

For many persons with autism, routines bring safety and predictability. A sudden change — even a "fun" surprise — can trigger intense anxiety.

Small changes can feel disorienting because they may require rethinking every step of the original plan. For many PWAs with autism, routines provide a sense of safety and control in a world that can feel unpredictable.

This is not stubbornness or inflexibility — it is how their nervous system finds stability.

How to support routine needs

  • Give advance notice of changes whenever possible
  • Use visual schedules to prepare for transitions
  • Explain changes clearly and simply, step by step
  • Offer reassurance: "We'll take it step by step"
  • Don't dismiss routines as rigid or unnecessary

Think of a routine in your own life that grounds you. How would you feel if it were disrupted without warning?

Sensory challenges
Sensory challenges

"The world is full of sensations. My senses may work very differently from yours."

Persons with autism often face sensory challenges. Their senses may be over-sensitive (hyper) — reacting intensely to loud sounds, bright lights, or specific textures. Or under-sensitive (hypo) — hard of hearing, unable to see in low light, or unable to feel what they are touching.

Some may seek deep pressure or repetitive movements (stimming) to self-regulate, while others may shut down from a single unexpected touch.

This varies greatly by person, and can even change day to day.

Sensory differences can include

  • Over-sensitive: loud sounds, bright lights, specific textures, strong smells, crowds
  • Under-sensitive: high pain threshold, difficulty sensing temperature, seeking intense sensory input
  • Stimming behaviours (rocking, humming, hand-flapping) help regulate sensory input — they are not "bad behaviour"
  • Sensory needs are real, not a choice — they cannot simply be "dealt with"

What environments do you find overwhelming? How might that feeling be magnified for someone with sensory sensitivities — every single day?

Repetitive behaviours
Repetitive behaviours

"My hums, movements, or rocking aren't 'strange' — they're my calm, my joy. I'm just being me."

Repetitive or unique behaviours — like rocking, humming, or pacing — can help regulate and express emotions or process sensory input. These behaviours are not random, and expressions differ from person to person.

What looks like quirky behaviour to an observer may be a person with autism trying to calm their nervous system, express joy, or focus. Judging or stopping these behaviours without understanding their function can cause distress.

The key is to understand the purpose behind the behaviour — and respond with curiosity rather than correction.

Common repetitive behaviours and what they may mean

  • Rocking or swaying — self-soothing, sensory regulation
  • Humming or making sounds — comfort, focus, or expression of emotion
  • Repeating words or phrases (echolalia) — processing, communication, or comfort
  • Lining up objects — creating order, reducing anxiety
  • Intense focus on specific interests — a source of joy, pride, and identity

Before judging a behaviour as unusual, ask yourself: what might this person be trying to express or manage right now?

Exhibition panels
Invisible Challenges — panel 1
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Invisible Challenges — panel 2
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